Ehlers Danlos

Collection by Tracey Ray


I have this genetic connective tissue, collagen disorder. We are not "glued" together right. We dislocate, have dissection & vascular ruptures. It's a very painful thing. An invisible disability and we deal with Dr.s who know little about it; people's disbelief; and prejudice that we are hypochondriacs; drug or attention seekers or just downright Lazy. It is most often misdiagnosed as MS; Fibromyalgia; and or Lupus. It is terminal. Just want to raise awareness. (taken from a kidred spirit)

Tracey Ray
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31 random facts about Ehlers-Danlos Syndrome (prounounced AY-lerz DAN-lowz), also known as EDS. It is a group of genetic disorders that are actually NOT rare – only rare to be properly diagnosed by… Ehlers Danlos Syndrome Types, Ehlers Danlos Hypermobility, Elhers Danlos Syndrome, Marfan Syndrome, Chiari Malformation, Rare Disease, Chronic Fatigue Syndrome, Chronic Pain, Chronic Illness

Inherited genetic disorders

Because each EDSer is different, members of the same family can have greatly varying symptoms. One may live a relatively healthy life with almost no symptoms, while their family member uses a wheelchair and feeding tube.

I have ehlers danlos syndrome. I am a push girl! Ehlers Danlos Syndrome Types, Ehlers Danlos Hypermobility, Elhers Danlos Syndrome, Chronic Fatigue, Chronic Illness, Chronic Pain, Cluster Headaches, Chiari Malformation, Psoriatic Arthritis

We need awareness, we need research, we need treatments, we need a cure. We need knowledgeable doctors, we need understanding friends & family. We need hope. #EDS

Until someone learns about EDS it can be hard for them to connect the dots between their migraines digestive problems blood pressure back pain and heart problems all being about connective tissue. Síndrome De Ehlers Danlos, Ehlers Danlos Syndrome Symptoms, Elhers Danlos Syndrome, Chronic Fatigue Syndrome, Chronic Illness, Chronic Pain, Migraine Relief, Pain Relief, Tension Headache

Differential diagnosis - Wikipedia

EDS / Ehlers-Danlos Syndrome awareness helps people keep an open mind so an effective differential diagnosis (DD) can be done. Click here to read about how a DD is done.

TMJ - Temperomandibular Joint Are you suffering from chronic headaches, jaw pain or tooth pain? Call to schedule an exam at Boss Dental Dental Health, Oral Health, Dental Care, Health Tips, Dental Humor, Dental Hygienist, Jaw Pain, Ehlers Danlos Syndrome, Chiropractic Care

Get the most up to date research on EDS / Ehlers-Danlos Syndrome and TMJ from the Google Scholar search results for ""ehlers-danlos" AND "TMD OR TMJ"".

The Shoulder – Anatomy, How It Works, Why It Hurts! Shoulders are a common area of injury. They are the linchpin of many movement functions and control, that once pain sets in, it can make day-to-day activities extremely painful and difficult to do. Chronic Illness, Chronic Pain, Fibromyalgia, Relax Tips, Complex Migraine, Shoulder Anatomy, Cidp, Chiari Malformation, Hypermobility

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I wrote about my top five ways to suspect Ehlers-Danlos Syndrome over a year ago. These included: Fibromyalgia IBS Chronic Pain Anxiety, depression and Autism Spectrum Disorders Alleriges and sensi. Syndrome Ehlers Danlos, Ehlers Danlos Hypermobility, Chronic Illness, Chronic Pain, Neurocardiogenic Syncope, Arthritis Hands, Cluster Headaches, Chiari Malformation, Crohns

The Beighton score is used to measure Hypermobility of Joints. Score one point for each thumb that will bend backwards to touch the forearm.

Yeah I totally thought this was normal. I guess not. Aortic Dissection, Cluster Headaches, Hypermobility, Ehlers Danlos Syndrome, Cardiovascular Disease, Dental Hygiene, Oral Health, Autoimmune, Chronic Illness

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I can do this easy! The Beighton score is used to measure Hypermobility of Joints. Score one point if you can bend and place you hands flat on the floor without bending you knees. Chronic Illness, Chronic Pain, Ehlers Danlos Hypermobility, Hypermobile Joints, Elhers Danlos Syndrome, Zebra Stuff, Invisible Illness, Emotional Abuse, Bending

The Beighton score is used to measure Hypermobility of Joints. Score one point if you can bend and place you hands flat on the floor without bending you knees.

A reason for the Migranes: Ehlers Danlos Syndrome Endometriosis, Fibromyalgia, Chronic Illness, Chronic Pain, Elhers Danlos Syndrome, Mitral Valve Prolapse, Hypermobility, Genetics, Human Body

A reason for the Migranes: Ehlers Danlos Syndrome

As many of you know, I have migraines. I've had them for 30 years or so. Throughout my life I've figured out different reasons for some of them, and have reduced the severity and/or frequency of them. (eyesight, blood pressure, hormones, etc). I've seen every specialist under the sun and had every test imaginable. Most doctors have just given me the shrug and I almost started to believe I was a hypochondriac. It was TRIATHLON that brought me to this answer! During the Cohassett Tri, I met a…